Lymphedema

Here are the definitions and symptoms that I got off the internet. I will put the things I am going through with my lymphedema in orange.

DefinitionBy Mayo Clinic staff

Lymphedema refers to swelling that generally occurs in one of your arms or legs. Although lymphedema tends to affect just one arm or leg, sometimes both arms or both legs may be swollen.
Lymphedema is caused by a blockage in your lymphatic system, an important part of your immune and circulatory systems. The blockage prevents lymph fluid from draining well, and as the fluid builds up, the swelling continues. Lymphedema is most commonly caused by the removal of or damage to your lymph nodes as a part of cancer treatment.
There's no cure for lymphedema, but it can be controlled. Controlling lymphedema involves diligent care of your affected limb.

SymptomsBy Mayo Clinic staff

Lymphedema symptoms include:
Swelling of part of your arm or leg or your entire arm or leg, including your fingers or toes
A feeling of heaviness or tightness in your arm or leg
Restricted range of motion in your arm or leg
Aching or discomfort in your arm or leg
Recurring infections in your affected limb
Hardening and thickening of the skin on your arm or leg
The swelling caused by lymphedema ranges from mild, hardly noticeable changes in the size of your arm or leg to extreme swelling that can make it impossible to use the affected limb. If your lymphedema is caused by cancer treatment, you may not notice any swelling until months or years after treatment.

Terry is AMAZING!! He helps the lymph fluid that builds up in my arms to release by massaging it every day. So patient, loving and he has great hands. The first week there was about a liter of fluid that was lost in my arm. I am so blessed to have a husband who is so kind and concerned about his wife. My sleeves will be here in about a week. Here is a picture of what they will look like. I will have one for each arm and both hands. Fashionable huh!!

Halloween

Went to Morgan for Halloween...

Terry is Mickey, Brickman is a Monster and Teagan is a Strawberry.

Wyoming Experience

I was feeling homesick to see my parents. I knew my nephew (Kalin) was leaving on a mission as well. I was talking to my dad----I told him that Terry had a HUGE auction and we couldn't come to Star Valley (SV). Dad said ..."Why not? We'll just come and get you." "Ahh, I am my dad's punkin-noodle."
The day before dad and mom were on there way, Vance (my brother) called and said Lee (my brother) was already in Utah and would love to come and get me. So, my big brother came and got his little sister. When Lee came into my home, he looked at me and started baaaaa-ing. My hair after all the chemo-radiation and coming backing in came back super curly. He took me back to my teen-age years when I was teased by my siblings often. My hair was curly then as well. My family would baaaa, they would say I was a poodle, they had a ton ways to tease me.
Lee and I had a good drive to SV.
After arriving in SV, Lee took me to my parents.



I talked my parents into going to see Shay play volleyball at the high school. Shay is the setter for the SVHS. She is a sophomore and fantastic!! It was fun, and the high school was having there breast cancer awareness night. PINK volleyball, pink uniforms, and me with breast cancer. It was a blast to see my niece and brought back a million memories. Brought me back to playing in high school, coaching and being a part of volleyball. We determined that I have been involved with volleyball for about 37 years. AMAZING! I got to see my coach Anita Harmon. It was an awesome experience. I also found out the same night that Lone Peak High School in Alpine, UT had there "PINK" night the same night. I coached the girls at Lone Peak as Freshman. They are now seniors. How blessed am I?? Pretty blessed.

Here is a picture of Shay and I after her game.

The next day I made chicken noodle soup. It was so yummy. Mom and dad were so excited to have yummy soup. That night we went to the football game. My nephew (Pahl) is a senior and played a great game. Mom and I sat in the car with the engine running. It was freezing outside. I had a hard time seeing the game but we listened to it over the radio. Use your imagination..... Watching a football game behind the bleachers and a chain link fence and listening to it on the radio. Pretty weird, but had fun spending time with my mom!!

Saturday we just spent time with my parents. We had a great time just relaxing and spending time with each other. I love my parents!!

On Sunday, we went to church to listen to Kalin speak before he leaves on his mission. His is going to Mexico....aka Cancun area. He did a great job, he has such a great personality and he will make a great missionary.

Sunday morning I also got a text from Janell. "Can you call me when you wake up". So I was awake at 7:30 and texted back.... "I am awake now". She call right away and told me the most sad news. Brandon's (Janell's husband) sister passed away during the night. I started crying and tried to understand why God would take a young mother of 37 years with three young boys, 9,7,and 2. She was the sister that introduced Janell and Brandon. I was her visiting teacher. She was a sweet lady and a great wife and mother. I know it is not my question to ask why? I talked with Janell for a while and told her that I would help her in any way.

Dad, mom and I went to a dinner after church and headed for Evanston, for Jenni, Jared and Terry to pick me up. We met at McDonald's to drop me off. I loved spending time with my parents.

We left Evanston and headed to Janell and Brandon's home. I told Jenni that we could do something around the house if nothing else. We arrived at Janell and Brandon's house and started to vacuum, started the wash, and cleaned the kitchen. When they came home we helped with the kids, while Janell and Brandon answered phone calls and attended to visitors. What a great and supporting community.

Bishop's Quest

On Sept 11 our bishop challenged our ward to not use social media, via-facebook, twitter, or blogging. At first I said, “What are you kidding me? This is the only way I share with my family and friends my progress.” I also knew IF I listen to the bishop’s counsel I would be blessed. It has been the full month and I am ready to catch up. There has been a lot that has happened in the past month. Take your time and catch up with me and my family. Thanks for waiting for me.

Grandkid Time

Jenni and I decided to go to Morgan to visit Janell. Brickman didn’t have school on Friday because of parent teacher conference. Janell also had a craft day with her ward, so I had the opportunity to see and stay with my grandkids. We painted, read stories, put window stickers up and made eyeballs. A picture is worth a thousand words.

Hair Cut

I had my first haircut since my chemo and radiation. I also got my hair lightened. It isn't very long but it is extremely curling. If you look at my right arm you can see my lymphodema. (swelling in my arm)

Water Walking

Brandon my son-in-law has accepted a new position as a Sells Representative for Peterson Medical. Terry and I are so excited to have him in Utah County. He is away from his family during the week, which is very sad. But, we are getting the opportunity to get to know our wonderful son-in-law. One idea we had was to go to the Orem Rec Center and getting me some exercise. Now mind you-I have difficulty walking on solid ground. I am kind of wobbly. I was a bit nervous going. I knew it would be good to exercise, but I was afraid I would be at the bottom of the pool. Brandon and Jenni volunteered to come with me and take care of me. So on Tuesday the 20th we headed to the recreation center.
I knew that I couldn’t get too much water on my radiation stickers or on the radiation site due to burning. So I got in with my cute water shoes, and my old swimsuit (with underwire support, which is not needed anymore) and went walking.
Jenni made sure I was taken care of in the locker/shower room. She also made sure I got into the pool ok. She swam next to me, while I walk at about chest level water. Back and forth I went –with Jenni swimming next to me. When we first got in the pool there was no sign of Brandon- Then at the other side of the pool we saw someone swimming back and forth. It was Brandon.
Brandon is one crazy man….. his goal in life (in my eyes) is to make me laugh, which he does very well. He came next to Jenni and I and away we went. I said, “ Hey, Brandon… have you ever seen so much back hair in your life?” Brandon replied, “ We could always braid it”. Jenni and I, “Grosssssss” “Sick” Believe or not it was pretty gross and we probably could have braided some of the back hair… So gross!! I really didn’t want to go back. Too many kids, back hair, and noise. Though I did make it for about a half hour of walking.
The next Thursday the 22nd, we went back. We went a little earlier to void the noise and people. We had little or no people in the pool. The faster I talked the faster I walked… We were going pretty good when Brandon said, “Hey, mom don’t you think you should stop?? “ “What? I am doing great.” “Mom, you’ve been in the water for about 40 minutes.” “Oh, yes, I’m finished” What Brandon knew and was taking care of me…. Is that I have a bad left knee, surgery several years ago left my knee a mess. The water is great for it. It doesn’t put the pressure on the knee like the ground would. I went a bit too long and my knee swelled like a balloon when I got home. I had difficulty walking and the stairs…. Well, let’s just say, Poor Terry had to push me up the stairs to get to my bedroom. What a trooper.
Wednesday the 28th….. I did NOT want to go back. Yet, I knew if I went water walking it would only help me. At about 5:45 we decided to go. What was so much fun… was…. Brandon and Jenni went again, but this time we got Jared and Terry to come along. It was so good to have my husband there with me. Watching to “boys” jump off the board and to be with Jenni. By goal- is to go to Orem two days a week to continue my exercise and strengthening of my body.
I know it will take time, patience on my families part, and hard work, but hopefully I will be back to full strength soon.

Breast Model

Jenni, Jenni’s sister-in-law Becca, and I went to the Women’s Expo. We had a wonderful time. The Expo had hundreds of booths that were fun. Bags, belts, home storage, pre-school books, necklaces and more. We had a blast looking at all the fun booths. At the end of our Expo our experience we came upon a booth. There was a sweet girl sitting on a “jazzy” chair, you know chair that are mobile. She was about 6-7 months pregnant and looking very bored. I looked up on the sign and it read “Petersen Medical”. I said to her, “Petersen Medical? My son-in-law starts with Petersen Medical next Monday.” “Real, who is your son-in-law?”
“Brandon Walker?”
“Oh, yea I’ve heard of him.”
“So what do you do for Petersen?”
“I do prosthetics,”
“Prosthetics”
“Yes, I do boobs”
“I need boobs , I can’t do reconstruction, so I need fake boobs.”
We talked for a while and she told me that I could get prosthetics, 2 bra’s and my insurance would pay for it. I was happy and made an appointment to meet with Kirsteen on Tuesday.
Jenni, Terry and I met Kirsteen at Petersen Medical. I thought we were going in to be fitted for my “new breasts” We sat down and waited for Kirsteen. I sat on a chair and it started to rise up. I mean the chair seat started to come up. I couldn’t figure out why the chair was rising. I got up and I was sitting on the remote control. Jenni and Terry started laughing.
Kirsteen came out of her office and asked me if I would ever consider helping the company to train new employees in fittings prostheses? We were in the store portion of the store.
I said, “ You want me to be your boob model? I would love to be your model. Wow, I had to lose my breasts to become a boob model. Crazy!”
So a week later, I am teaching two girls how to place prosthetics, or at least allow my body to be used. I joked with them that they were lucky it was me who was their model and not a grouchy old woman. The two girls did a great job and to tell you the true, I am glad to help, and teach.
So, I guess I’m a breast model, and they even gave me a gift certificate.

ER Visit 2

With my new radiation treatment, comes a drug to strengthen my bones. “Zometa” I was asked to do a clinical trial with this drug, which I agreed to. The biggest side effect is with the jaw in people who receives it. In about 5% of cases, there is a part of the jaw that can just die off. The drug was given to me on Wednesday 9/14, no real problem….. well , yet anyway. Terry and I left the oncologists office about 10:00am. We were on our way to Jenni and Jared’s house so Terry could go back to work and Jenni could take me back to get radiation that afternoon. Terry was driving me to Jenni’s and I started slurring my words. I became very tired and lethargic. I couldn’t focus. My eyes kept opening and shutting. Everything was in a blur. I felt like I had been “Drugged”. Terry said I acted like I was drunk. I HATED the feeling of not being in control of my own body. It really scared me, not being in control.
After arriving at Jenni’s house, I asked Terry for a priesthood blessing. I believed this would help. I am so grateful for the priesthood in my life. Terry gave me the blessing and within a few minutes I could felt better. I then was talking to Jenni about the influence of God in our lives. I told her how the Priesthood is such a wonderful way to receive the gifts from God. In mid-sentence I fell asleep. I slept for about an hour and a half. I then woke up and we headed off to radiation.
I received my radiation, visited with Dr. Clark. I told him of the reaction to the medicine I had that morning. I also told “the woman in charge of the study” of the reaction I had with the medicine as well. About that time I kind of stumbled. She insisted that I get wheeled (in a wheelchair) to my oncologist, Dr. Rich’s office. I didn’t think it was necessary. In fact, I felt kind of dumb, crusin’ off in the double wide wheelchair. I was kind of dizzy, but I felt like I was okay. One of my radiation tech’s, Brooke, gave me a ride Dr. Rich’s. We did take a side road to show Jenni the radiation machine. I was sure we told “the woman in charge of the study.” Obviously, she didn’t hear that we were taking a side road and she took off to the office. Brooke, just went ahead and took me to the other side of the hospital. One thing I really like about Brooke, is she is so BLUNT. She is REAL! We found “the woman in charge of the study” in a panic looking for me at Dr. Rich’s office.
Jenni and I waited for Dr. Rich for about 15 minutes (our wait is much longer on other occasions) —he sent us right to ER. I wasn’t exactly sure why. When Nancy (PA for Dr. Rich) wheeled me to the ER, I asked her, “Why the ER, what is the big rush?” She said, there could be two things that could happen. #1 Slight Stroke, #2 The cancer could have gone to the Brain. My blood-pressure skyrocketed. 159/92. Having it on my ankle is a new experience in itself. Average blood pressure is 130’s/80’s. I was worried to say the least. I think more than anything I was not sure of what was going to be the outcome. THE UNEXPECTED.
Terry had called our bishop to see if there was someone in the ward that could help give a blessing to me. Brother Palmer, who works in the Provo area came over to give me a blessing. Only in Utah would you tell nurses you were going to give your wife a blessing and they asked if we had consecrated oil. I thought it was funny.
They took me to get an emergency CT scan to check if “indeed” I did have a stroke or the cancer had moved. So off I went … It took about an hour to complete the scans. The results: Vertigo…. Really??…. They gave me a bunch of prescriptions that I was “supposed “ to fill. I guess I am a little like my dad. If I don’t need it… I’m not going go take it. I really don’t believe I have Vertigo. Off to home we went.

ER Visit

With my new radiation treatment, comes a drug to strengthen my bones. “Zometa” I was asked to do a clinical trial with this drug, which I agreed to. The biggest side effect is with the jaw in people who receives it. In about 5% of cases, there is a part of the jaw that can just die off. The drug was given to me on Wednesday 9/14, no real problem….. well , yet anyway. Terry and I left the oncologists office about 10:00am. We were on our way to Jenni and Jared’s house so Terry could go back to work and Jenni could take me back to get radiation that afternoon. Terry was driving me to Jenni’s and I started slurring my words. I became very tired and lethargic. I couldn’t focus. My eyes kept opening and shutting. Everything was in a blur. I felt like I had been “Drugged”. Terry said I acted like I was drunk. I HATED the feeling of not being in control of my own body. It really scared me, not being in control.
After arriving at Jenni’s house, I asked Terry for a priesthood blessing. I believed this would help. I am so grateful for the priesthood in my life. Terry gave me the blessing and within a few minutes I could felt better. I then was talking to Jenni about the influence of God in our lives. I told her how the Priesthood is such a wonderful way to receive the gifts from God. In mid-sentence I fell asleep. I slept for about an hour and a half. I then woke up and we headed off to radiation.
I received my radiation, visited with Dr. Clark. I told him of the reaction to the medicine I had that morning. I also told “the woman in charge of the study” of the reaction I had with the medicine as well. About that time I kind of stumbled. She insisted that I get wheeled (in a wheelchair) to my oncologist, Dr. Rich’s office. I didn’t think it was necessary. In fact, I felt kind of dumb, crusin’ off in the double wide wheelchair. I was kind of dizzy, but I felt like I was okay. One of my radiation tech’s, Brooke, gave me a ride Dr. Rich’s. We did take a side road to show Jenni the radiation machine. I was sure we told “the woman in charge of the study.” Obviously, she didn’t hear that we were taking a side road and she took off to the office. Brooke, just went ahead and took me to the other side of the hospital. One thing I really like about Brooke, is she is so BLUNT. She is REAL! We found “the woman in charge of the study” in a panic looking for me at Dr. Rich’s office.
Jenni and I waited for Dr. Rich for about 15 minutes (our wait is much longer on other occasions) —he sent us right to ER. I wasn’t exactly sure why. When Nancy (PA for Dr. Rich) wheeled me to the ER, I asked her, “Why the ER, what is the big rush?” She said, there could be two things that could happen. #1 Slight Stroke, #2 The cancer could have gone to the Brain. My blood-pressure skyrocketed. 159/92. Having it on my ankle is a new experience in itself. Average blood pressure is 130’s/80’s. I was worried to say the least. I think more than anything I was not sure of what was going to be the outcome. THE UNEXPECTED.
Terry had called our bishop to see if there was someone in the ward that could help give a blessing to me. Brother Palmer, who works in the Provo area came over to give me a blessing. Only in Utah would you tell nurses you were going to give your wife a blessing and they asked if we had consecrated oil. I thought it was funny.
They took me to get an emergency CT scan to check if “indeed” I did have a stroke or the cancer had moved. So off I went … It took about an hour to complete the scans. The results: Vertigo…. Really??…. They gave me a bunch of prescriptions that I was “supposed “ to fill. I guess I am a little like my dad. If I don’t need it… I’m not going go take it. I really don’t believe I have Vertigo. Off to home we went.

More Radiation/A Lot of Blessings

The results are in on the CT scan I had on Monday.

• No active Cancer in the liver
  


• No active Cancer in the lungs



• No active Cancer in the Sacrum (lower back)



• Continued pain due to neuropathy in my feet



• Continued pain in the chest area

The spot that was on the T-4 on the spine has grown 4 millimeters. Thus, I get to start radiation on Monday. They will zap the spot.

They will also start giving me a drug, via IV that makes my bones strong. It also has a 5% rate of having a side effect in people. Portions of the jaw may die. So I get to go to the dentist first. I will also be part of a clinical study to track people that take this drug. I will also see a pain specialist to start controlling the pain I am experiencing.

Should be an exciting NEXT three weeks.

I feel very blessed that the cancer is staying "Non Active".

CT SCAN

You know you've been to the Radiation Department too often when the receptionists know your first name. They say to you when you come in, "hi, Gloria how's it going?" So my latest CT scan was on Tuesday morning. Terry and I arrived to register at about 7:30 a.m. They asked the normal questions..--what are you allergic to, what medications are you taking, how long have you had "This Problem" etc. I feel like I need to take a photocopy and bring it to them each time.... Don't they keep records, I mean really...

After getting the paperwork was finished, they pricked my finger and got some blood. They then took Terry and I to a room to have me drink a thick radiation goo.....(Berry Smoothie) yah right. When they brought me two bottles I was shocked. Then they told me it was Berry.... If anyone knows me... I don't like berries, especially raspberries. Well, I asked them if they had other flavors, they told they DID NOT. I was feeling very sad. So I plugged my nose and drank a cup, every 10 minutes. It took an hour to drink and then another half hour for it to go through my system.

Jenni came and let Terry go to his meeting. The nurse came to get me. They took me back to the dressing room. They have two sizes of pants, Large, which unfortunately does not fit me. They next size is 5 XL. yes you read it right 5 XL. I was swimming in these pants. It just cracks me up that as many people as they have come in and out of the hospital in a day, they are Large or 5 XL.

I went and had the CT Scan, the results will be tomorrow night. I will try to put the results on Friday.
Until then......

Happy Anniversary

Terry and I got married 8 years ago and were sealed in the Bountiful Temple. We have had a fun and exciting time in those years. It never fails that Terry has meetings and/or conferences on our anniversary every year. This year was no exception. So I devised a plan.... A plan to go on a date with my husband. I worked my charm a week prior.. saying that we haven't done anything for a year. (which we haven't thanks to the whole cancer thing). Well what should we do? I talked him into going online and reserving a room in Salt Lake. We did a "staycation".
On Friday night we drove to Salt Lake and stayed at the Sheraton. We then searched for a a place to eat. Have any on you been to Salt Lake on a Friday night? The economy is doing well... you can't find a place to #1 park and #2 the line in the restaurants are HUGE! I gave Terry the suggestion to just go to either the Lion House or The Garden at Temple Square. He chose The Garden. It was amazing. The food was fair -- but the view was breathtaking.
We then went back to the Sheraton. The king size bed was HUGE and down-filled comforter was so cuddily. It was the first time since my surgeries that I could lay on my side. It felt wonderful. I slept so well! I just enjoyed sleeping and being with my sweetheart.
The next morning we went to Our Temple, Bountiful... Talk about another amazing view! Terry and I did some sealings for those who have passed on. It was fun to see how long these people have waited to be sealed to their spouse. I felt incredibly grateful that I had my sweetheart and we have been sealed. I know that when one of us passes from this world ..... we will be together Forever!! It gives me great peace to have this knowledge. My husband is the world to me. He is so kind, and I think in the 8 years I have been married to him ...he has raised his voice ..once! But who's counting;)
What a wonderful anniversary a couple days before our real anniversary on August 30! Love you sweetheart!

Cancer UPDATE:
I have had tingling in my fingers in my right hand.... I have had pain from my underarm to my wrist on my right arm. I am going to a lyphademeogist today to see what the problem is.
I am feeling well. I am tired and sleep a lot. (the doctor said I need to sleep and get to the REM stage for healing to take place). My feet have been really sore as well... I have neuropothy. Which translated means my nerves are shot in my feet due to the chemo. Will I get my feeling back you say??? No, this one I am stuck with. Thank you chemo for screwing up my feet!! I am dealing with it the best I can. Terry is incredibly understanding and patient. Next week is the BIG CT scan to check the spots on the spine. Hopefully, the doctors will tell me it is scar tissue and there is nothing to worry about. I said Hopefully! Prayers are still welcome... if your knees are not yet worn out. Thank you all for you love and support.

I can't leave today without saying what a wonderful, supportive family I have. My daughter Jenni has spent the ENTIRE summer taking care of her mother! She hasn't had much SUMMER FUN! She has taken care of me EVERYDAY!! I know this is not fun but I am so eternally grateful to my sweet Jenni and her sacrifice she has given to me... ( I also think they have been incredibly blessed to have photo shoots every weekend) Thanks Jen for your sacrifice! love you! Oh-- HUGE NEWS I Have saved-- Through sacrifice comes blessings..... Congratulations Jared and Jenni for bringing me a new grand baby in March! I am so very excited!! I am so sorry you've been sick... Invetero finally worked! YEAH!!! I guess we were sick together this summer!
One more bit of happiness... Brandon will be working for a new company in Provo now! Good bye RC Willey.. You are losing one of the BEST sells people you have ever had. Congratulations to Janell and Brandon. Sure love you!!

My first real outing!

BREATHTAKING!!

Because of my blood levels being low, I really can't be around a lot of people. Because of neuropathy (numbness in the feet) I really have difficulty walking. Because of anemia I can't go to high elevations without getting extremely tired and lethargic. I also can't be in the car for long periods of time. As a result---This is the first time in 49 years of my life that I have NOT gone to Star Valley for a visit during the summer. I have been feeling very sad about it. Mom and Dad have been wonderful to come and visit me. But, I have missed the mountains.

My Aunt Maurine and my cousin Marie, called last week and invited me to go see the wild flowers at Ablion basin above Alta. I am ashamed to say--I really didn't know where that was. I was so excited to go I didn't care. So Marie came and picked me up (still not driving --due to med's and still healing)

We drove up the Little Cottonwood Canyon to see the wildflowers. Now I am not sure if it was that this was the first time I had been in this Canyon or it was I was seeing things through new eyes.... but it was amazing. The mountains, the rocks, the flowers, the smells, even the chair lifts were amazing. I couldn't take it all in. I became emotional several times. I guess I see things differently.
I went on my real first outing since my chemo, radiation and cancer experience. Maurine and Marie helped me walk a ways up to field of flowers. BREATHTAKING!!!

Yes, That is snow in the canyon.....

I can almost get me hands above me head.

Loving life!!

I am so grateful to Maurine and Marie for taking me on my first REAL outing. I found that you really don't have to go to far from your back yard (or Maurine's backyard) to find yourself in the mountains! I had such a wonderful time. We had a fantastic dinner at the Porcupine.

It was so wonderful--- I had to do it all over again this morning with my husband, Terry, Jenni and my father-in-law, Haskell. Thanks for the memories!! Amazing side-note.... I ran into Marie's friend Wendy eating lunch at the Porcupine... small world.

Terry's Birthday

I have had a wonderful week. Terry's Birthday was Sunday. Brandon and Janell the grand kids came along with Jared and Jenni. Terry's dad came to give the "Ole man" his dues. Yesterday, I called mom and dad to see what they were doing. I asked them to come and have dinner with us. They drove from Star Valley and had a wonderful dinner to celebrate my sweethearts birthday. We had a wonderful time.
I am feeling pretty good. I am still healing from the radiation treatment. I have some sores on the breast area which are healing very well. I am still tired, but feeling much better. I am looking forward to getting my strength back. I still can't lift a gallon of milk out of the fridge without both hands. It will come back slowly, but surely. I am working on my upper body strength. Hand pulleys right now. The weight room will have to wait.

RESULTS THURSDAY!!

RESULTS:

NO ACTIVE CANCER IN THE LIVER!!

NO ACTIVE CANCER IN THE LYMPH NODES!!

YEAH!!

TWO SPOTS: One on the sacrum and one on the T-4 vertebrae.

Going back for a CT scan in four weeks to check them out!


Gratitude is HUGE right now. I can never express the amount of gratitude I

have to my Heavenly Father- His Son Jesus Christ- the fasting and the

prayer from Family, Friends, Ward Members, Co-Workers, and ALL

who prayed in my my behalf. THANK YOU!! I Love you!!

MIRACLES DO HAPPEN!

PET Scan-Last Day of Radiation-Amazing Family

Okay- Yesterday was an incredibly crazy day. At 8:00 I had a P.E.T. Scan. This scan is pretty amazing. It takes about 2 and a half hours. The scan projects the entire body and the cancer cells show up in red. It also shows active parts of the body. Very cool to see.

After the P.E.T. Scan I went right over to get my LAST Radiation treatment. The staff are amazing! The radiation process would have much more difficult without these amazing people. I will always remember Mama Mia and relate it to my radiation, as they played it the first four weeks. The last week they put on some more updated music. I loved it. Yesterday the played CELEBRATION! These wonderful people also took my cute grandchildren to the radiation room and took them for a ride on the bed. They showed Brickman how the big machine moved around my body. What an amazing bunch!! So grateful I had the opportunity to know them. Even though they burned me up! Well at least the machine burned me up!

After my last radiation treatment, I went to get my blood levels drawn. Which came back with my White Blood Count is higher. YEAH!

Meanwhile- My incredible family took care of me the entire day! I am so happy I have such wonderful husband, daughters, grand kids, and son-in-laws.

When we got home my daughter brought me flowers. When I got home-- I was exhausted, emotionally and physically! I was talking to Janell about everything and the stress I was feeling. I started to cry with all the emotion that had built up inside of me. My sweet little granddaughter, Teagan, turned to me and said with conviction, "Grandma Glori- BE HAPPY" I just started laughing. What a little sweetheart!

I Love my Family!!

NO INTERNET

COMPUTER at home has been out of commission for two weeks!! YIKES!!

COURAGE

I lost and found “MY Courage”. When I had my mastectomy, Janell my daughter, gave me a small rock with a breast-cancer ribbon and the word “courage” in it. The first week of July I lost my courage rock. I was so very sad. I went to the store where Janell got it and asked…..” Do you have any courage?” I have lost my courage…” They looked at me weird and just laughed. I searched for my courage for a couple of weeks. I thought maybe I dropped it in the car. Terry and I searched the car, my clothes and and the house trying to find “MY Courage.” On Saturday Terry and I went to meet Janell, Brickman and Teagan. We were going to meet mom and dad for lunch. We met Janell at a park and ride. I got out of the car and when I came back to get in the car.. You’ll never guess what I found …. You guessed it…. MY COURAGE rock. There it was, just sitting there right in the car. I was so excited, I started to cry. (please ---remember I have no hormones and cry over everything and at a drop of the hat). I know that it is just a small insignificant thing but. I truly believe God knows what I need right now. I know HE knows I need my courage… even it is as small as a little rock.

Redneck

I love “red-neck” jokes. Jeff Foxworthy makes me laugh! So when radiation made my neck completely red, I couldn’t resist the jokes, especially making fun of myself. You know—I am from Wyoming and so I could be a true “red-neck”. The chemo I am taking, intensifies the radiation to come to the surface. So my neck is really—really red! The pain that comes with it is totally intense. So here are the pictures of the “red-neck” and the gray hair that comes with it. Because of the redness and the pain my Dr. thought it would be best to take off a few days. They also stopped the chemo, which was making my feet red and swollen as well. So here I am without a working computer and trying to heal!!

Snap dragons

Flowers have always been a part of my life. I remember my Grandma Erma had the most beautiful flower garden in the front of her yard every year. You could look over a sea of purple petunias.
Last summer I had the most amazing snap-dragon flower garden you’ve ever seen in my front yard. Somehow-from the time I got this cancer, I have related my cancer to my flower garden. I know it sounds crazy but… that is what I have done. Last December after I found out that I had cancer I was in my garden trimming down the snap-dragons. The thought came into my mind that I would not ever see my flower garden again. The thought came into my mind and then left again. I really didn’t think about it again until spring.
Jenni was helping me trim up my snap-dragons and preparing my garden for spring and summer. She came across a fern type plant in my garden. It was quite pretty. I just didn’t like the looks of the fern. I told her I didn’t want it in my garden. She tried to dig it out. The roots on this plant were unbelievable. The twisted and turned below the surface of the ground. It had the longest roots I have ever seen on a plant. One root was about two feet long. I told Jenni that this was a cancer plant trying to kill my flowers. It twisted around to roots of my snap-dragon and started killing them off.
When Terry and I drove into our yard one day I saw my flower garden. The snap-dragons in my garden were starting to die. I broke down into tears. Poor Terry, didn’t know what to do. I went into the house as just sobbed and sobbed. Call it my breakdown. I felt like my life was spinning out of control.
Terry trimmed my snap dragons. He took the weed out of the garden the best he could. I was surprised he didn’t go and plant an entire garden of new snap dragons in my garden. He is a wonderful husband. He cares about my feeling and what is going on in my life. He takes care of me and makes sure I am safe. I feel so bad sometimes that this “WEED” is in my life right now. I truly believe it will be put under control. I just need a little weed killer. That is where the radiation and chemo comes in. They are doing the job they need to right now .
I know it is crazy like I said before that I have put this stupid cancer into a metaphor with my snap dragon garden. But that is the way my crazy mind works.

MOM and DAD

I have great parents. I know that when kids get older they say this... or maybe they don't. I just know that my parents have done so much for me and my family.

Dad has a way with me that he really doesn't share with the other kids. He has a spiritual side that is pretty amazing. I love that. I don't think a lot of people every see him with that side. He is always the rough and tough guy... well it seem to others anyway. I have always been his punkin' noodle along with the rest of the girls in the family. But, I believe, (and I can believe it) that I was the original!! I have a very handsome dad. I love his silver hair. In most pictures he is being funny or looking away from the camera.

When I was growing up, I though I had the coolest mom in the world. One things she taught all of us was how to clean, (even if I didn't like it) I know that it is those little things that are important. Like scrubbing the corners with a toothbrush. You always knew when all the kids helped with cleaning the house and we were done cleaning THE HOUSE WAS CLEAN. I pretty sure I passed those traits down to my kids as well. It's called the white glove test.

Both my parents are always giving and helping others. It makes me sad to see my mom having trouble walking. She is still the most beautiful woman in the world. My hair is coming in now and I put it against my moms hair and GUESS WHAT!! yes it is the same color as my moms. Pretty cool huh?

At Erica my nieces wedding last week, my daughter Jenni took these pictures. She captured my mom and dad with real smiles and how they look to me. Nice work my Jenni!!

I really love my parents and all they do for me and for my family, my extended family, neighbors, ward members, the list just doesn't end!

11 Treatments left

You'd think that if I am not working right now that I would have time to keep up my blog. Apparently, NOT!! Bottom line-- I am super dooper tired. I told Jenni that she has a sleeping potion in her couch that makes me so very tired!! Every time I sit in her couch I fall asleep! Amazing! Honestly, this radiation is kicking my butt!!

Good news! I have only 11 radiation treatments left. I am very red on both sides of my neck, my underarms and my chest area. I have been using two very good lotion treatments. One my amazing friend Joceyln sent me. It's called Jean's cream. It has helped so much. Thank you so much for the lotion! Really don't know how you know what I need, but come through everytime! The second is a radiation gel and lotion that only one pharmacy carries. It is also very expensive. They come in sample packets. Brooke, the radiation therapist rubs it on my burned back everyday. But, if it works, money is no object... right.

I had my cousin (Marie) coming to take me to one of my treatments this week. She totally dropped everything to help me. She is such a sweetheart!! She emailed me and told me she had a bit of a head cold. I asked the doctor if that would be a problem. My white blood cell count is only 3.3 right now. That means I am very susceptible to any virus', colds, really any type of sickness. I felt so bad that I had to tell her I needed to have another person take me. But, right now with only a few more treatments I can't take any chances. Thanks Marie--- we'll get together soon!!

I did go to a wedding last week. I had a ton of anti bacterial gel and a mask on the entire time. I tried to stay away from people. My niece Erica and Andrew were married in the Draper temple. It was awesome! My daughter Jenni took the pictures and Janell helped with the shading and whatever else Jenni needed. They did such a great job.

Sad note: I have been in some extreme pain. I have had a rough couple of weeks. My chest, from my surgery is healing but still hurts. I am very sore and have a difficult time putting my hands above me head still. I am exercising to help stretch the muscles, I just don't know how long it will take. Also, my dumb feet are like they are on fire. The chemo I am on makes your feet red, raw and even peel. The doctor told if they get too red, I needed to stop taking the chemo. My big toe looked like a strawberry. My feet and toes hurt so bad, I couldn't even have the sheets touch them at night. My sweet Terry, helps me each night, by rubbing them, if he can.... I was in so much pain I wouldn't even let him touch me.... It hurt soooo bad. So when I went to the doctor I told them about it. I stopped the chemo and started up on some antibiotics. I am happy to say they still hurt-- but not as bad... by any means.

I'll try harder to keep up the blog! Thank you all for your amazing support!

Radiation Tech's Brighten My Day!!

I have the best Radiation Technicians any one person could ask for. It is just crazy how you can be feeling low one moment and these crazy (fun) people can make you just laugh!


So I it was a Friday the 1st of July when I was getting fluid at Dr. Rich's office. I had a bad week and was feeling very dizzy and tired. The fluid helps me feel better and have a bit more energy. I had gotten in late at Dr. Rich's office and had an appointment to get radiation at 1:45. I knew I was going to be late so I had the one of the nurses call over to Radiation and tell them I would be late. When I got to radiation I was indeed late. It was about 2:00 when I went in and change into "the gown". I had told the Tech's about my blog several days before. I told them how it was a release for me and helped me cope with all the yuckiness!!


Those crazy (fun) Technicians in all there "Glori" did the following. Brooke, Melanie, Janell (a student -who's last day was that day), our other Brooke was gone that day. But, I think Gary was involved as well.... Took the pictures with the crazy hats from my blog.... made them into 8X10 blowups and taped them on each of their backs. So here they are..... "Come on Gloria, we're ready for you". Meanwhile, I see them walking in to the radiation room in front of me with ME on their backs. But, they don't stop there..... They take the crazy pic, ya know the one with the gray frow, and put it on the radiation machine. S0 when I lay down and look up there I am. I was laughing so hard. You'd think that was enough.. NO-- Usually they play Abba (Mama Mia) while I have my radiation. This day they changed it to, you guessed it, "GLORIA". I was have my radiation, cracking up laughing. I what other case have you heard of that the patient is laughing while having radiation. They totally brightened my day. They are simply the best. I told someone that these people will help me get through this trial in my life. Thanks Dr. Clark's Crew. You're all the best. Oh-- I think I spelled all your names right!

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My Kids

My sweet grandkids and amazing husband. Just look at the love in the room. Check out the awesome Hawaiian "Grandpa Terry Shirts" Yep they match!! Thanks Jenni and Jared for getting them when you were in Hawaii!!

Picture to make you laugh!!

I have been given--wigs-hats-scarfs anything to cover my head. Notice the eyelashes are gone and eyebrows as well. By the way they have grown and are growing back.
After my first surgery in May, Sherry came to see me and took these pictures. Not looking to bad a couple days after having your breasts removed huh!! These just make me laugh!! They make Sherry die laughing, she couldn't stop. So - Please ENJOY! Oh- FYI Halloween is only a few months away... Let me know how I can help :)

The importance of Vitamin D

Apparently, (my new favorite word) I have been ornery, snappy and not a very nice person. I haven't really seen it. But those around me tell me it is pretty bad. I have been having my radiation done every day. We are 11 down, 22 left to go. On day 10 I had a bit of a breakdown. I have been extremely dizzy and like I said earlier not a nice person. I went to my radiation appointment and then to get my blood drawn.
Apparently- a "normal" person should have a minimum Vitamin D level of 32. But, of course I am not normal--nor will I ever be-- my level is coming in at a whopping 12. YES, you read it right 12!! Unbelievable. So I have got these great Vitamin D pills I now take once a week. They are only 50,000 mg. Can we say side-effects anyone. That is a shock to the system. It was a shock to my system. I was so dizzy I could hardly walk. Good thing I have my Jenni and Terry to take care of me right now. Being low in Vitamin D- causes ornery-ness, depressions, dizziness, crankiness, basically not being a nice person. So Jared and Terry are making joked about how they need to by more milk- They think they are sooo funny.
Some of my blood levels are low as well. My White Blood Count should come in at about 6 or so. My went from 4.8 to 2.7 in a week. (Stay away from sick people) I am anemic as well. (iron levels low) I was walking around thinking I was doing just fine. (Well I am fine in attitude only) but my body is telling me something different. Dr. Clark say that he doesn't know whats wrong with me because I don't complain. I am keeping a optimistic attitude and he can't tell when I am feeling bad. So yesterday, he sent me to get fluids and anti nausea medicine. I am feeling like a new woman. More blood will be taken and analyzed today. Crazy what blood levels can do--- Crazy what Vitamins can do. So here is the question??
GOT MILK??

Sister to Sister/Mother to daughter

What a great weekend. It all started on Friday with a Bacholorette party for Erica Merritt (my niece who is getting married in a couple of weeks. ) Sherry (my sister) called on her way to Salt Lake. She asked if Jenni and I could come and meet them at a restaurant in Sandy. This was about 4:00 and we were to meet them at 6:30. Sherry knew I couldn't go to Star Valley for her last shower. I was thrilled that I could be included. This was given by Andrew's family who I knew none of them.
Jenni and I drove to Sandy (okay Jenni drove I am still on driving restrictions because of surgery). Andrew has a very nice family. Erica has a lot of friends in Utah. It was fun to see her with her pink boa and fuzzy headband on her head. We just laughed and had a fun time. We then went to Andrew parents house for the rest of the party. Whoa..... If you need ideas for games.... talk to the Erica hee hee. I think she was even shocked. It was fun to laugh. I mean really laugh for a while.
I then told my sister she was coming to stay with me. She said she invited herself -but I don't think so. I was so glad to have her for the weekend. We talked and laughed and then we cried. We were having a great time.... Then Terry came to the top of the stairs and said "Gloria you need to rest!!! It's 1:00" I had no idea it was so late. So we all went to bed.
The next morning, we just hung out. I slept in and stayed in my PJ's most of the day. Sherry painted our back door frame outside, did laundry all day and made strawberry jam (YUMM)
We had such a great time. It took my mind off all the pain I have and stress that comes with it. Even though we had some "cancer" talks. It was good that she was with me for a couple of days.
On Father's day we invited Jenni and Jared and my father-in-law Haskell. We ate yummy salad, fruit and even had a BBQ steak.
Sherry then left and went back to SV. I was fun to have her. I am so glad for my sweet sister Sherry. Love you sis
Jenni took over for Sherry on Monday. I jumped right back in to treatments. The radiation feels like a sunburn (pretty bad one). Jenni is a sweetheart and takes me to my appointments and for drives. I am glad she is so close.

Treatment Update
The Doctors say I am doing well. They are pleased with the radiation thus far. Everything is lining up the way it should. The treatment looks positive.

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Look-- look I'm getting hair. It so happens to be grey!! Oh no!!

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Sporting a pink cap. Whoa Hoo. Looking good!!

Sunburn vs Radiation

So- They started the radiation treatments. They last just less than an hour--the technicians said it should take less time each time they do it. I think it is remarkable that a ray can go through your body and kill the cells that are plaguing the body. CRAZY!
When starting the radiation they made an entire road map or a treasure map on my chest. I would love to show you but I think that would not be wise. I'll try to describe it instead. Try to imagine purple marker marks making squares on the right side. Tattoo marks on all the outside of my chest. Blue marks on the left side of the chest. Don't forget the entire scare that goes completely across my chest wall, and Oh, yes, the neon pink "x" marks the spot on the clavicles (breast bone) on each side of my chest. The markers are done completely with "Sharpies" very colorful and very interesting to see.
I told my son-in-law, Brandon about the process. Being the funny man he is said, "Wow, mom that gives a whole new meaning to "TREASURE CHEST""...hee hee hee. I guess "X" marks the spot!!
The radiation doesn't last a real long time. The last phase they put a squishy thing on my chest called a BOLUS or Cold thing! The Bolus brings the rays to the surface. This is what stings a bit and makes you feel like you have a sunburn. This is what will kill the cancer on the surface of the skin. When the tech's were working on me, setting things up... they said don't worry we won't hit you. It may come close but we have never hit anyone yet. WELL, I am here to tell you they were WRONG. They didn't know they had to deal with "The Schwab" nose. The machine bumped into my nose. I'm saying...."Mel, hey Mel it just got my nose" She felt so bad. At the end of the session they gave me some shower gel, lotion and soap. How nice.
I have some gel and lotion for radiation patients the helps with the burning sensation. It is quite expensive... But, what do you do??? Go through the pain or pay and go through less pain. (depending on how you look at it of course)
After coming home. The burn--was hanging in there- like I said it feels like a sunburn. I just took off my top and rubbed the radiation lotion and gel all over it. Hope nobody just walks in... of course there really isn't anything to see be a Treasure map and chest.....hee hee

Let the Radiation BEGIN

Let me start by saying I have an incredible family-friends and ward members. I have and have had people praying, fasting, helping me clean my house, bring meals, and basically taking care of me. Janell, Jenni, Brickman and Teagan were at my house all week last week. I love having my kids and grand kids around me. They make me so happy. It makes me laugh when my granddaughter Teagan (2) wants to see my owhee. Then wants to kiss it better. So she tries to kiss my chest. It is the cutiest thing you have ever seen. Brickman takes my temperature to make sure I'm doing okay.
I have my sweet Mary from work bring a meal to my family. I have a fleet of women come to my home to vacuum, dust and do my bathrooms. I have visits from family, friends and neighbors. I have been so blessed!!

Today starts a 6 1/2 week process of radiation and more chemo. The doctors have asked me to come to Provo daily instead of American Fork. They are trying some new procedures with me. Hopefully this will accomplish two things. #1 Have the process and procedure work on me to put the cancer in remission. #2 Help those in the future with this type of breast cancer put their cancer in remission.

Bluntly-this cancer attacks the lymphatic system throughout the breast. It is very aggressive and mean!! Because it is stage IV that means it has gone to other organs. aka (my liver). I have some HUGE challenges coming up the next several weeks. I will have raw sores on my chest wall. The doctors want the radiation to burn the surface of the skin to KILL the cancer cells in the skin. The chemo pills will enhance the radiation process. The chemo pills do have side effects. (sores on the palms of the hands and the bottom of the feet, fatigue, mouth sores). This will be an interesting process. I am very nervous, but incredibly hopeful. I know I am the hands of the LORD!!

People keep asking what they can do to help me. "Let me know if there is anything I can do" "Call me if I can help in anyway" Thank you so much for the offers. I am being well taken care of. So myself (along with my daughters) say-------- go to the temple. ..... go do a kind deed for some one else....pay it forward....... take in someones garbage cans........allow someone to merge --when driving......Smile at someone!! In other words be a better YOU!! It is very contagious and you will be helping me!! Thanks all!!

What happened to me?

I have no uterus!
I have no ovaries!
I have no boobs!
What happened to me? :)

Watch out Cancer! You're next!

Ok, the latest:
on Monday I had a hysterectomy. They couldn't use the port for the IV or the Anesthetic, so they had to find a vein in my foot. Now that was a joy...let me tell you! Being VERY ticklish was not helpful. They called in a doctor to put the IV in my foot. He was very nice and very laid back. (Polynesian dude). He couldn't find a good vein, so he went and got a really cool machine called: The Vein Viewer. COOL! It shinned a green light on my foot and anywhere that there was a vein it stayed black. CRAZY! So he found a vein and the nurse held down my leg so I didn't kick him when he touched my foot. (TICKLISH) Then he poked it. OUCH! it wouldn't thread. He tried and tried. Meanwhile Jenni is getting all pale watching him and has to look away so she doesn't pass out. He decides to try the other foot. I looked up and there are 8 medical personal all around me. WOW! How many medical personal does it take to put in and IV? apparently 8. :) He got it to work this time. It was on the inside of my foot/ankle. So after all that... they realized they forgot to have me pee in a cup to make sure I'm not pregnant. TRUST ME PEOPLE I'M NOT PREGNANT! So with this needle in my foot, I have to walk to the bathroom walking on the outside of my foot so I don't mess up the needle. I was right! I'm not Pregnant! and that's a good thing! (I understand they have to test everyone)

Surgery went well. I wasn't as funny coming out this time. In fact, I was kind of crabby. The surgery took about 3 hours. There was a lot of scar tissue because of my intopic surgery back in the 80's so they couldn't do it laperscopically. So they went to plan B and I had a vaginal hysterectomy. Which is good. No incisions.

I was very nauseous last night, but feeling much better today. Hopefully I'll be able to go home soon. I'm waiting for the doc to come check on me and I have to go to the bathroom before they'll let me leave. So Jenni and I are now watching Loony Toons and Janell's on her way. And Terry's at work.... but he was here at 6am this morning checking on me. :)

Talented Daughter--Jenni- Silverstrand Photography

I need to boast just a little. I have an extremely talented daughter who does photography. She has been staying/taking care of me the past few weeks. I have watched her in action and I am incredibly impressed with her work. She started her business a few years ago. She is getting better with her pictures each and every day. I just saying.... If you know of someone who needs a photographer..... she the one to have. Here are some of her pictures.
She is on my blog just go to Silverstand Photography BLOG and look at some of her most resent pictures or you can go to her website at www.silverstrandphotography.com.

Rest and Relaxation--- With a little exerise thrown in....

This week has been filled with rest and relaxation. I find myself not sleeping at night. All kinds of things are going through my head. Because of the lack of sleep, I find myself sleeping throughout the day. I am going for walks (at least two a day).

I went to get measured for the radiation today. I have to have my arms above my head for at least two hours....... I can't get me arms above my head yet. I have to do more exercises to make my incision more pliable. So they are going to do the measuring next Wednesday... and I will start radiation the next Monday. This will also give me a few more days after my surgery to heal.

I am so excited to see my mom and dad. I haven't seen them for about three months. They are coming on mom's birthday, which is this Saturday the 4th of June. They are not staying long ---just for a visit and possibly lunch.

I am feeling really good. I am a little tired but, all in all I feel really good. My incisions are healing really well. I will be ready for all the excitement next week.

Thank you all for the prayer, for the flowers, cards, dinners, lawn care etc. etc. etc. I can never repay the love you have show me the past 6 months. It was cute when the flower shop dude came to my house and said, "More flowers for Gloria Richardson" we just laughed! My sister, Sherry has sent me cards every day for the past three weeks. It is fun to go get mail and know you have more than just bills. Thanks sis!!

Doctor Day

We had a doctor day week. The first appointment was Tues the 24th with an OBGYN, Dr. Cloward. She will be preforming a hysterectomy on the 6th of June.

We then went to Dr. Tittensor's (surgeon) to get my drains out. (You know, the drains they put in you after surgery. I had four, two under each arm. They took out two of them a week ago and I got the rest taken out on the 26th). She said I was doing really well. I would have to agree with her. ( I feel really good--just hurt a bit)

Our next stop was Dr. Clark's office (radiation oncologist). I found out that my last radiation in 2003 was a drop in the bucket compared to the radiation I will be having. I will have blisters and they are going to bring the radiation out to the skins surface. I have the high chance of getting lympodema, which causes swelling in the arms. This will last for 6 1/2 weeks. It is scheduled for the 8th to begin. I have to go get measured on the 1st of June to make sure the organs are kept save. (I must tell you....I am a bit nervous for the radiation to begin) YIKES!!

Our next stop later that afternoon was to Dr. Rich. (oncologist). He said I would start chemo on the Sunday after surgery. This will be a pill (low dose) chemo. He said the cancer is very aggressive and after surgery I will be post menopausal--- Terry says my head spins around-- I think his is just being rude!! I really don't think my hormones are that bad. I mean I know I am cranky but- if you had to do this I think you'd be cranky too! Anyway- I will start a new anti-estrogen pill to put the cancer in my liver at bay. Between getting my ovary out and the anti-estrogen pill we can hopeful put this cancer in remission! He is a very knowledgeable Dr. He tells you the worst and hopes for the best. I try not listen to the worst! I always HOPE for the best.



It has been a crazy week. Hopefully the next week will be better.

Thursday RESULTS

Went to Dr. Tittensor's to have two drains removed from my chest and get results about the surgery.

Long story ---Short---
13 lymph nodes removed on the left side... All cancerous
5 centimeter tumor removed on the left side- Cancerous
19 lymph nodes removed on the right side- 18 cancerous
18 centimeter mass removed on the right side- Cancerous
Tissue still has cancerous cells on the lower part of the right side and moving to the center of the chest.
Cancer still in the liver being fed by estrogen from my only ovary.
Pretty depressing! huh....

I know people are on my side --fighting for me!!

Good news-- MOST that cancer is now OUT and OFF my body. We are focusing on the skin by attacking it with radiation. The liver will be taken care of with anti-estregon pills and removal of the ovary. This coming Tuesday- OBGYN appointment .... surgery again.. sooner than later. Thursday- Dr. Tittensor appointment (surgeon). Dr. Clark appointment (radiation Dr.) Dr. Rich (oncologist).
The best news is that Dr. Tittensor let me know that they all meet along with radiolgists, other oncolgists and a strong medical team to discuss my case. It makes me feel wonderful that I have some many people on my side.

I am in good hands and I feel very positive going into this week. I appriecate the continuous prayers and love you all have given me. So thankful for a good medical team, family and friends who are on my side.

Daughters are amazing!

I know how hard it was for Jenni to be in Hawaii and wanting to be here in Utah to take care of her mom. I was so happy that her and Jared had the opportunity to go to Hawaii and be with the Skelton's. I kept telling her that I was in good hands and that she could take care of me when she got home.

I had my daughter Janell with me since I returned from the hospital. Terry and Janell have taken care of me. Letting me sleep, helping me out of bed, helping me get food into my mouth and changing bandages. Janell and I had a moment when I took off my bandages and revealed my breastless body. We just sat and cried. I am glad they got the cancerous tissue off my body. I am so glad I have Janell, taking care of me. She does such a great job. She is so caring and loving. I am so grateful to her mother-in-law and sister-in-laws who helped with my cute grandkids-- so Janell could be here with me and Terry. I didn't realize how much I needed her until she was there helping me. What a strong child I have.

Sherry (my sister) and her daughter Erika came to see me on Wednesday. She stayed overnight. We had a super visit. I felt bad I wasn't strong enough to stay up and giggle, cry, and talk until the wee hours of the morning. But I was happy that my sister and her daughter came to see me. Sherry took tons of pictures of me and my many, many hats. We just had a great time and laughed a lot. There is healing in laughter.

Surgery Day

Terry and I arrived at the hospital at 6:00 am and checked in. It was a 5 hour surgery and an hour in the recovery room. The nurse in the recovery room says that I am pretty funny! I guess when I was coming to I said some pretty funny stuff. I just remember a few. Yellow flowers were given to me by Erica (Sherry's daughter) and Andrew her finance. I told them I was glad they didn't get me pink for breast cancer awareness.... I was very aware I didn't have breasts. They all laughed...

I was in the hospital on Saturday and went home on Sunday afternoon. I went for my first walk two hours after surgery. The nurses and staff at the hospital were amazing!

On Saturday, Dr. Tittensor came in to check on me. She said I was doing great. I am so impressed with her. After she left, she came back within about ten minutes with her 6 year old daughter. Her daughter was concerned about my port. She needed to know I was OK.

So grateful for people who care about me and for my family. So thankful for a loving Heavenly Father who walks by my side.

The 2nd Opinion

Terry and I left after work on Wednesday and stayed with Janell and Brandon for my second opinion with Dr. Hansen who's office is in Ogden. So, Terry, Janell, and I left for Ogden on Thursday Morning. We wanted to get there early because we had paperwork. When we got there, the nurse was talking to the receptionist telling her when I got there that Dr. Tittensor had already talked to Dr. Hansen. I thought to myself, "Wow, what a doctor! I'm so glad she's in my court!" I filled out all the paperwork that took about 45 min, then was called back into the office. The nurse had to take a blood sample from my finger. She squoze my finger, and the blood shot across the room. haha. I thought she hit an artery. We went into the office to wait for Dr. Hansen.

The phone rang, and it was Dr. Tittensor. She told me that the MRI results were back and that I did have cancer in the liver. She also said the Biopsy came back and there are cancer cells still in the breasts. She told me that after discussing with two oncologists, pathologist, and radiation doctor, that we should indeed go forward with surgery the next day. She would have a pathologist in the surgery with us. She thought she could get the cancer even if she had to take extra skin and then do skin graphs later. She also told me that she had already talked to Dr. Hansen about my case and thought I was in very good hands. We planned for surgery for 7:30am tomorrow. so I needed to be at the hospital at 6:00am the next morning.

Dr. Hansen:

He came in the office and told me that he had talked to Dr. Tittensor about my case, and was very impressed with her. He asked me what I knew about the PET Scan. I told him that I have cancer in my liver, and that I needed my breasts to be removed. He added, that there were spots in the lung as well, but he wasn't sure if it was cancer. He also told me that there are three ways to treat the liver.
1. surgery - which he did not reccomend.
2. radiation microblast
3. chemo

He suggested the chemo.
He also explained to me that cancer cells are very small and they might not show up on a PET Scan. His goal as well as anyone else who worked with me was to put the cancer in remission. He told me that I needed to be strong like my mom and have a positive attitude like my dad and I could probably get through everything. He said that Dr. Rich, my Utah Valley onchologist had done a very good job in treating me and that I should probably stay with him.

We left the office hopeful, knowing I had to prepare for surgery the next day.

MRI Day

We met my Jenni so that she could stay and give me a ride back from the MRI becase Terry had a meeting he had to go to. We waited over an hour and a half to get into the MRI.

The MRI was to see if I had cancer in the Liver. So they strapped me down and put me in the machine. I kept my eyes shut because I'm extremely clostrophobic. (I didn't want them to know that). :) I also was getting over a cold, that Terry gave me the week before so I had a hard time breathing. That's all the MRI really is - is breathing. "Breathe in, hold your breath for 30 seconds. Breathe in, hold your breath for 40 seconds." After about 2 & 1/2 hours of eye shutting experience, I got finished with the MRI and then I had to wait for the results.

Cancer? or Blood Vessels that have pooled together?

The Whirl Wind Week

Went to Dr. Tittensor's office for consultation on when to take off my breasts. Whoa Hoo! She talked with Terry and I about the options we needed to take. She said she wanted another core biopsy from my right breast to make sure the chemo had done it's job and killed the cancer throughout my breast. We agreed on surgery to be scheduled for Friday. We told the Dr. that I had a MRI the next day as well as another appointment with my mom's cancer Dr. in Ogden. She was completely supportive about getting another opinion and told us that she would contact us Wednesday afternoon to give us the results on both the MRI and the core biopsy. The Dr. also got us an appointment with a plastic surgeon to put on some new breasts during the surgery on Friday.

We left Dr. Tittensor's office and headed to Dr. Bishops and found out what was to be expected with the reconstruction. Can I just tell you --Poor Terry!! He got his education on breast reconstruction on this day. They showed us a book in detail of the process that we would be going through. From the surgery to the new breasts. Can I just tell you that Terry had an "ahh haa" moment. It was funny!

PET scan and Results

Monday, May 25th I was up early and got a PET scan. If you're wondering what a PET scan is... Well-- it is a scan that is given to people who have cancer. Radio active solution is injected into the patient (me). After the injection I was placed in a dark room for 70 minutes. I was also given a diet 7-up with some other solution given to it. After the 70 minutes it was taken to the CT scan machine. The scan took another 45 minutes. BREATH IN -- BREATH OUT- HOLD YOUR BREATH....... 10 SECONDS LATER.... BREATH. In and out of the machine.

Half way through the scan the tech came in and injected me with contrast. This give you the feeling you just wet you pants. NOT COOL!!


Terry and I had to wait until Thursday to get the results of the PET scan. Meanwhile, Mom, Janell and Jenni all came to Utah for BYU Women's Conference. They all stayed with me. We had a great time together during the morning. We listened to some fantastic talks. We went to the Carl Bloch exhibit which was fantastic. I love spending time with family. After the exhibit Terry and I went to the Doctors office to get results.


Terry and I waited at the Dr. Office for about 45 minutes. Waiting.... waiting..... waiting. He came in a basically told Terry and I the the cancer had moved to the liver. Also, my (only ovary) was feeding the cancer. I would be have surgery for both breasts, lymph nodes and also have my ovary removed. No-mention of the breasts... What am I here for???? Breast Cancer!! I was overwhelmed. I didn't know the questions to ask the doctor at his point. I felt deflated.

The next morning after talking with with my family, I had a lot of questions. I wanted another radiologist to look at the PET scan. Heavens... I wanted my doctor to look at the PET scan. I also thought I needed another opinion. I want to make sure, and if I have to be the noisy girl wanting answers.... I guess that is what I need to be.... the noisy girl. The doctor called and Terry and I gave him all of our requests.

Come to find out..... The doctor called me on Monday morning. He said that the the mass that was on my liver could in fact be blood vessels that had pooled on my liver. A little different then CANCER!! I need to still have an MRI to make this concrete evidence.

So long story---short. I have three appointments next week. Tuesday. Dr. Titensor. Surgeon. Wednesday. MRI Thursday, Dr. Hansen (moms cancer Dr. in Ogden) for a second opinion. I am feeling much more hopeful!!